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Steve Chanez

Steve Chanez

The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD). FSHD is a condition that directly affects me and my ability to do everyday tasks.

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope. I'm committed to making sure that no one faces this disease alone. It is my hope that if my son is also affected by it that we have a cure in place for him or at least he has all the help he will need.

Please visit the FSH Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!

Thank you for your support! - Steve

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$1,975
raised of $1,000 goal
 

Recent Donations

1. RCRay Chanez
Have a great run
$25.00
2. tjTed Jacobsen
3. DCDavid Chanez
Praying for Steve Chanez.
$300.00
4. PCPatricia Chanez
$50.00
5. MWMike White
$100.00
6. E Erin Wilke Charitable