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Jeff Babcock

Jeff Babcock

It is time to celebrate! Those are the words my father sent to my cousin Gary Harvey and me in a telegram 40 years ago on the day we completed our 5000 Mile bicycle trek along the Trans-Canada Highway #1 (TCH) from Victoria Vancouver Island BC to St. John’s Newfoundland. This summer marks the 40th anniversary of that epic adventure and I would like to take this opportunity to celebrate this milestone and dovetail it with another cause close to my heart, finding a cure for FSH Dystrophy! This involves the world of genetic research and the brilliant research teams who have closed the gap and are on the verge of rolling out a clinical trial using a drug that will hopefully regulate the protein that is toxic to the muscle groups impacted by FSHD. They are so close, and success would mean the world to thousands of people impacted by FSH Dystrophy including me. They are on the proverbial final stretch of their own 5000-mile journey and the finish line is in sight! I would love to be able to send them a telegram, like the one my father sent to me, to celebrate their success, but I need your help to stop FSHD in its tracks! Memories of my trip are not the focus of what I did, rather, they are the vehicle to get people engaged.

Twelve years ago, I was diagnosed with FSH Dystrophy which is a little know but common form of Muscular Dystrophy. At that time, I my neurologist informed me that I needed to limit or stop my active lifestyle which would mean no more climbing, cycling, skiing, etc. Those of you who know me understand that this didn’t go over well with me. I simply didn’t want to give-up doing everything I loved to do with my family and friends. For me, I was fortunate and have been able to remain quite active. But for others with FSH, the story is different, and it is for them that I am asking you to have fun, get out and get active so they can have hope that they someday, with your help, might be able to regain some of their mobility and be encouragement to keep moving.

Now comes the fun part! How can you help? Simply click on “Donate” tab and contribute. My goal is to raise at least $5000, one dollar for every mile we rode our bicycles across Canada. You can directly support me or encourage your family, friends, co-workers and businesses to sponsor you per mile as you ride, run or swim and ask them to donate as well – anything helps! This summer, starting June 1st and running through August 6th, I am going to commit to riding 10% of what we rode 40 years ago which is 500 miles. It is not as easy as it was 40 years ago, but I am so excited to do my part to make this contribution to curing FSHD!

My FSH Dystrophy link is https://teamfshd.fshsociety.org/TCH4FSH where you and your supporters can donate in honor of your efforts. More information to come…Thanks, Jeff Babcock



Our Vision: A world free of the suffering caused by FSH Muscular Dystrophy (FSHD)

Our Mission: Find treatments and a cure for FSHD while empowering our families

Our Strategies:
- Accelerate the development of treatments and a cure for FSHD
- Increase, engage, and empower our stakeholders
- Aggressively leverage and expand resources to support our Mission

Our Core Values: Research | Community | Urgency

Please visit the FSH Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!

Thank you for your support! - Jeff

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