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Susan Aumiller

Susan Aumiller

The FSH Society has become near and dear to my heart. Both our son, Bill, and my husband, Bob were diagnosed with FSH muscular dystrophy late in 2017. The news was devastating. There was only one thing to do - get to work and learn as much about the disease as possible and actively raise awareness and funds for the cure!

The gene causing FSHD has been identified and a CURE IS IN THE WORKS! But it takes money to fund what it takes to deliver that cure safely.

The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—but it is coming and I'm committed to making sure nothing stands in the way of the delivery of the cure to all who suffer.

Please visit the FSH Society website (fshsociety.org) to learn more about FSHD and ways to get involved. There is a great deal of excitement. Let's keep it going!

Thank you for your support! -

Blessings,
Susan

Comments

$18,850
raised of $25,000 goal
 

Recent Donations

$2,500.00
1. L LCNB National Bank
$1,000.00
2. RWRichard Wood
$100.00
3. RRoger and Charlene Lossing
$10,000.00
4. CFConnor Foundation
$250.00
5. ?Anonymous
We look forward to joining you for this event again this year!
$500.00
6. Susan Aumiller
Captain

Team Aumiller BEAT DUX4

$24,925
$5,000