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Susan Aumiller

Susan Aumiller

The FSH Society has become near and dear to my heart. Both our son, Bill, and my husband, Bob were diagnosed with FSH muscular dystrophy late in 2017. The news was devastating. There was only one thing to do - get to work to learn as much about this disease as possible and actively raise awareness and funds for the cure!

The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cure—but there is hope. I'm committed to making sure that no one faces this disease alone.

Please visit the FSH Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!

Thank you for your support! -



raised of $10,000 goal

Recent Donations

1. Susan Aumiller
2. MEMary Jo Edwards
3. DSDorothy Seibert
4. WSWilliam Seibert
5. TLTim Love

Team Aumiller BEAT DUX4