HO
Edit in profile section

Welcome to My Page

Heidi Ortiz

Heidi Ortiz

The money I'm raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue. There is no effective treatment or cureā€”but there is hope. I'm committed to making sure that no one faces this disease alone.

Please visit the FSHD Society website (fshsociety.org) to learn more about FSHD, ways to get involved, and everything that is happening!

Thank you for your support! - Heidi

Comments

$50
raised of $50 goal
 

Recent Donations

$50.00
1. HOHeidi Ortiz
Member of

Team RMU

$3,645
$3,000