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Welcome from Laura!

Laura Maffei

Laura Maffei

Hello, Everyone!

My team is participating in this Walk & Roll to fund research that will directly impact people such as myself who live with FSH Muscular Dystrophy (FSHD), and our families.

Facioscapulohumeral muscular dystrophy, or FSHD, is a degenerative muscle-wasting disorder. It affects an estimated 1 in 8,000 individuals. It affects everyone differently, but over 70 percent of patients experience debilitating pain and fatigue, and many lose the ability to perform everyday activities such as walking, carrying objects, typing, etc. There is no effective treatment or cure yet—but there is hope, as researchers are making progress.

Please support us in any way you can! Thank you!

- Laura


raised of $100 goal

Recent Donations

1. RFRoslyn Friedman
2. LFLaury Fishman
3. AHAmy & Norman Hanover
4. Laura Maffei

Team Laura