Welcome to My Page

Friends Of Hank

Friends of Hank

The money we're raising by participating in this Walk & Roll is supporting programs and funding research that will directly impact patients and their families living with FSH Muscular Dystrophy (FSHD).

Facioscapulohumeral muscular dystrophy, or FSHD, is a genetic disorder that leads to the weakening of skeletal muscles. It affects an estimated 1 in 8,000 individuals, or 870,000 people worldwide. Around 20 percent will need a wheelchair by age 50. Over 70 percent experience debilitating pain and fatigue. There is no effective treatment or cureā€”but there is hope.

Thank you for your support! - Friends of Hank


raised of $500 goal

8 Participants

Join Our Team

Recent Donations

1. SBSusan Brown
2. LRLouise Rubel
Good luck Hank!
3. LFLogan Fahey
Go get em guys. Wish I could give more!
4. RBRobert Beseda
5. ABAngie & Mason Bentley
6. BRBridget Regan
Way to go Nick!!